id author title date pages extension mime words sentences flesch summary cache txt cord-331785-ljsd8qld nan A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19:CCC19 Governance, Protocol, and Quality Assurance 2020-10-29 .txt text/plain 2713 125 38 Future directions include increased electronic health record integration for direct data ingestion, expansion to additional domestic and international sites, more intentional patient involvement, and granular analyses of still-unanswered questions related to cancer subtypes and treatments. In addition to the steering committee, operational subcommittees include publications (to establish authorship guidelines for projects utilizing CCC19 data and/or resources), funding (to identify sources of funding for the consortium, disseminate this information to consortium members, and assist in the writing and critical revision of grants), epidemiology and biostatistics (to establish guidelines and provide support to investigators in designing and executing studies with the highest rigor, reproducibility, and impact), informatics (to develop and maintain the survey instrument[s] and oversee standardization of the data model, integration of data directly from EHRs, and visualization of data), and patient advocacy (to engage with cancer patient communities and advocacy networks and to coordinate with parties reaching out to CCC19). ./cache/cord-331785-ljsd8qld.txt ./txt/cord-331785-ljsd8qld.txt