id	author	title	date	pages	extension	mime	words	sentences	flesch	summary	cache	txt
cord-035030-ig4nwtmi	nan	10th European Conference on Rare Diseases & Orphan Products (ECRD 2020)	2020-11-09		.txt	text/plain	12244	688	50	Conclusion: With this survey Endo-ERN is provided with a large sample of responses from European patients with a rare endocrine condition, and those patients experience unmet needs in research, though these needs differ between the disease groups. Various factors compound the development of treatments for paediatric rare diseases, including the need for new Clinical Outcome Assessments (COAs), as conventional endpoints such as the 6 Minute Walking Test (6MWT) have been shown to not be applicable in all paediatric age subsets, [3] and therefore may not be useful in elucidating patient capabilities. S18 Background: To help inform cross-national development of genomic care pathways, we worked with families of patients with rare diseases and health professionals from two European genetic services	./cache/cord-035030-ig4nwtmi.txt	./txt/cord-035030-ig4nwtmi.txt