id	author	title	date	pages	extension	mime	words	sentences	flesch	summary	cache	txt
cord-276288-upv2o8f6	Prior, Sarah Jane	Person-centred data collection methods to embed the authentic voice of people who experience health challenges	2020-07-21		.txt	text/plain	3680	189	42	The patient or consumer voice in healthcare has evolved from an aspiration to becoming an expectation, which in some developed countries is respected by inclusion in nationally auditable standards (Australian Commission on Safety and Quality in Health-Care. Understanding the characteristics of the population is key to ensuring appropriate representation of consumers in person-centred or patient involvement research methods. 4 Direct engagement of patients and other consumers in research and health service improvement activities requires careful methodological planning around desirability and feasibility and the practical implications for the involvement of patients and consumer as participants. 5 The following examples of person-centred research methods enable the authentic voice of individuals who experience health challenges to be collected. 11 Codesign using focus groups is an opportunity for patients and other consumers to consider and discuss their experiences within healthcare systems and services in a collaborative, participatory setting.	./cache/cord-276288-upv2o8f6.txt	./txt/cord-276288-upv2o8f6.txt