id author title date pages extension mime words sentences flesch summary cache txt cord-324918-36om8n2d Guha, Chandana Suspension and resumption of kidney transplant programs during the COVID‐19 pandemic: perspectives from patients, caregivers and potential living donors‐a qualitative study 2020-07-08 .txt text/plain 3496 202 50 title: Suspension and resumption of kidney transplant programs during the COVID‐19 pandemic: perspectives from patients, caregivers and potential living donors‐a qualitative study RESULTS: We identified five themes: cascading disappointments and devastation (with subthemes of shattering hope, succumbing to defeat, regret and guilt); helplessness and vulnerability (fear of declining health, confronted by the threat of and change in dialysis, disconnected from healthcare, susceptibility to infective complications); stress from uncertainty (confusion from conflicting information, unable to forward plan), exacerbating burdens (incurring extra financial costs, intensifying caregiver responsibilities), and sustaining health through the delay (protecting eligibility, relying on social support, adapting to emerging modalities of care). The suspension of kidney transplantation programs due to COVID-19 was devastating for patients who felt medically vulnerable because of declining health, and susceptibility to infection and having to miss in-person appointments and monitoring. We generated novel and detailed evidence on patient, family and potential donor perspectives on the suspension and resumption of kidney transplant programs during COVID-19. ./cache/cord-324918-36om8n2d.txt ./txt/cord-324918-36om8n2d.txt