Golfers support NPC research through Parseghian Classic at Pebble Beach Resorts | News | Notre Dame News | University of Notre Dame Skip To Content Skip To Navigation Skip To Search University of Notre Dame Notre Dame News Experts ND in the News Subscribe About Us Home Contact Search Menu Home › News › Golfers support NPC research through Parseghian Classic at Pebble Beach Resorts Golfers support NPC research through Parseghian Classic at Pebble Beach Resorts Published: March 09, 2012 Author: Marissa Gebhard Golfers are teaming with the Ara Parseghian Medical Research Foundation and the University of Notre Dame to find a treatment or cure for Niemann-Pick Type C (NPC) disease, a rare and fatal neurodegenerative disease that primarily strikes children before and during adolescence. Proceeds raised from the Parseghian Classic golf fundraiser at Pebble Beach Resorts on June 22-24 will fund NPC research at Notre Dame and other institutions. “Notre Dame researchers are at the forefront of NPC research and their advances in the understanding of this disease give hope to all NPC children and their families,” says Cindy Parseghian, who co-founded the Ara Parseghian Medical Research Foundation just two months after three of her four children were diagnosed with NPC. Pebble Beach Resorts, one of the premier golf resorts of the world, has hosted numerous world-class tournaments, including the U.S. Open championship for five years, which it will again host in 2019. Golfers in the Parseghian Classic will play a round of golf at The Links at Spanish Bay and another at the Pebble Beach Golf Links. The all-inclusive event opens with a reception and dinner at Indian Village and closes with a reception and dinner at the Beach Club. Through the Michael, Marcia and Christa Parseghian Endowment for Excellence at Notre Dame, NPC researchers at the University and other U.S. institutions collaborate with NPC researchers, parents and clinicians in Australia, Germany, Switzerland, Brazil, France and Canada to bring together expertise in molecular biology, drug discovery, cell biology and neurology, with results from clinical studies. Some physicians and parents are pursuing cyclodextrin, a compound that has been shown to help move cholesterol out of lysosomes in NPC patients. In 2010, Notre Dame and the Ara Parseghian Medical Research Foundation formed a partnership to accelerate research in NPC disease. Greg Crawford, dean of the College of Science at Notre Dame, and his wife, Renate, brought national attention to the cause with the 2010 bicycle ride Desert to Dome from Tucson to Notre Dame, and again in 2011 with the Road to Discovery bicycle ride from Boston to Dallas. This summer, the couple will embark upon another cross-country ride that will end at Pebble Beach, Calif., in time for the Parseghian Classic. Golfers and non-golfers are still invited to support NPC research by joining the Parseghian Classic; online registration is open through April 13 (Friday). More information on the Parseghian Classic and NPC research is available at neimannpick.nd.edu. Contact: Marissa Gebhard, 574-631-4465, gebhard.3@nd.edu Posted In: Research Home Experts ND in the News Subscribe About Us Related October 05, 2022 Astrophysicists find evidence for the presence of the first stars October 04, 2022 NIH awards $4 million grant to psychologists researching suicide prevention September 29, 2022 Notre Dame, Ukrainian Catholic University launch three new research grants September 27, 2022 Notre Dame, Trinity College Dublin engineers join to advance novel treatment for cystic fibrosis September 22, 2022 Climate-prepared countries are losing ground, latest ND-GAIN index shows For the Media Contact Office of Public Affairs and Communications Notre Dame News 500 Grace Hall Notre Dame, IN 46556 USA Facebook Twitter Instagram YouTube Pinterest © 2022 University of Notre Dame Search Mobile App News Events Visit Accessibility Facebook Twitter Instagram YouTube LinkedIn