key: cord-0948978-25wbezq0 authors: Ruiz-Ramírez, Jessica Alejandra; Olarte-Arias, Yury Arenis; Glasserman-Morales, Leonardo David title: Educational Processes for Health and Disease Self-Management in Public Health: A Systematic Review date: 2021-06-15 journal: Int J Environ Res Public Health DOI: 10.3390/ijerph18126448 sha: bc09ed4bc42ad5752093f80b1702285834e8ed26 doc_id: 948978 cord_uid: 25wbezq0 This study systematically reviewed processes and educational programs for self-management of health and diseases that are the subject of public health attention. This systematic review of the literature (SRL) is relevant to recognizing the characteristics of the educational processes in self-managing chronic diseases in contexts where technology did not play a significant role. Following the PRISMA protocol, the authors independently reviewed full-text articles from several databases using the following criteria: (1) intervention studies evaluating the effects of self-management health programs; (2) educational process of disease self-management; (3) studies that included at least one control group, and (4) peer-reviewed studies. In addition, the Scottish Intercollegiate Guideline Network measurement tool was used to assess the risk of bias in each trial. In the final sample, 38 articles were included. The findings regarding health education methods of self-care, using community-based care and technological tools, are considered fundamental. Among the conclusions, the relevance of the pedagogy that health education processes demand improvement in post-pandemic program effectiveness stands out. Educational processes in public health seek to ensure the populations' right to health by promoting improved living conditions, welfare, and development [1] . Public health education programs address healthcare-related challenges caused by (often chronic) diseases; and they focus on socially and economically vulnerable populations [2] . They also promote healthy lifestyles through nutrition and mental, sexual, and reproductive health. Similarly, medical and health education processes are mainly organized around disease prevention and health promotion training programs. Their common purpose is to facilitate knowledge generation and develop skills necessary for the self-care and self-management of diseases [3] . Likewise, training programs are focused, on the one hand, on health education programs, i.e., actions and activities focused on providing information to individuals and groups to encourage the promotion, maintenance, and restoration of health, and, on the other hand, on medical education programs, which aim to promote the training of physicians and other health professionals for participation in health education contexts, including those required in public healthcare. Health education interventions have traditionally focused on prescriptions and lifestyle restrictions [4] . This approach is a passive transfer of theoretical knowledge, but lacks feedback and does not always consider the realities of communities [5] . Therefore, health authorities have had to make great efforts to facilitate access to medical and health education, considering that educational processes optimize medical treatment results and the prevention of the development of diseases or problems that affect people's quality of life [6] . Such actions align with the World Health Organization (WHO) recommendations, teristics of the educational processes in self-managing chronic diseases in contexts where technology did not play a significant role. This research will contribute to educational methodologies in public health for a new vision of implementing educational technologies in a post-pandemic context. Therefore, this article helps expand the theoretical corpus on the characteristics of innovative educational processes to self-manage health in public healthcare. The first section of this article describes the methodological strategy used in the research based on a systematic literature review, while the second presents our findings, analysis, and interpretation. Finally, the third section contains discussions on the following question: what are the characteristics of the educational processes of self-management of health in public health care? This systematic review was conducted according to the preferred reporting items for systematic reviews and meta-analyses, or PRISMA, guidelines [23] . To identify potentially relevant papers, we searched the following bibliographic databases: Scopus and Web of Science (WoS). Articles from peer-reviewed journals were included if they were published between 2006 and 2020, written in English, and available via open access to use information and communication technologies (ICTs) to increase and improve the dissemination of knowledge. Open access refers to freedom, flexibility, and impartiality [24] . Furthermore, quantitative, qualitative, and mixed methods studies were included to consider different aspects of self-management health education programs. Finally, articles that did not fit the study's conceptual framework were excluded, for example, research developed within a pandemic context. One author performed the initial eligibility assessment by reviewing the titles and abstracts. Then, two authors independently reviewed full-text versions of 92 articles using the following criteria: (1) intervention studies evaluating the effects of self-management health programs; (2) studies including at least one control group; and (3) peer-reviewed studies. Data extraction was performed independently by the authors. The following data were extracted from each study: first author, date and place of publication, study design, population served, analysis of the program effectiveness, EdTech used, and pedagogical strategy. Extracted data were entered into standardized MS Excel files. Any disagreements were resolved by discussion among the authors. The Scottish Intercollegiate Guideline Network (SIGN) measurement tool was used to assess the risk of bias in each study in this review. SIGN was developed in 1993 to improve healthcare quality for populations in Scotland by reducing variation in practice and outcomes by developing and disseminating national clinical guidelines with recommendations for effective practice based on current evidence [25] . This tool suggests the use of risk of bias domains, and so, a set of key considerations was used. These considerations sought to prompt and guide assessors to consider potentially relevant issues when conducting their assessment for a risk of bias domain. Using SIGN, we assessed the study's internal validity and risk of bias. We assigned values of "high quality (++)", "acceptable (+)", "low quality (−)", or "unacceptable: rejection (0)" to each study. The rating (0) enabled assessors to indicate that the information required to rate risk of bias was either not reported at all, or reported too incompletely to rate risk of bias with sufficient confidence. The risk of bias was assessed independently by the reviewers and a consensus process resolved any disagreement. A total of 3114 records were found in the database search. These search results were imported using Parsifal, and 1428 duplicates and 81 records marked as ineligible by automation tools were removed. A detailed flow chart of the selection process is shown in Figure 1 . (0) enabled assessors to indicate that the information required to rate risk of bias was either not reported at all, or reported too incompletely to rate risk of bias with sufficient confidence. The risk of bias was assessed independently by the reviewers and a consensus process resolved any disagreement. A total of 3114 records were found in the database search. These search results were imported using Parsifal, and 1428 duplicates and 81 records marked as ineligible by automation tools were removed. A detailed flow chart of the selection process is shown in Figure 1 . After the elimination of duplicates, 1605 records were examined. Subsequently, we searched for papers citing any of the initially included studies. However, no additional articles meeting the inclusion criteria were found in these searches. Finally, 38 full-text papers were reviewed. It was identified that, while some articles met the inclusion criteria, they evaluated performances in regular professional training processes in health [26, 27] , leaving aside the analysis of teaching-learning processes in public health contexts. For this reason, they were excluded from the analysis. The research was conducted across five continents: Europe (n = 14), Asia (n = 13), North America (n = 8), Africa (n = 3), and Oceania (1). Twentyfive studies involved adults aged between 35 and 60 years, while ten studies reported educational programs for self-management of health and disease with young adult participants between 18 and 35. In a smaller proportion, programs involving follow-up and After the elimination of duplicates, 1605 records were examined. Subsequently, we searched for papers citing any of the initially included studies. However, no additional articles meeting the inclusion criteria were found in these searches. Finally, 38 full-text papers were reviewed. It was identified that, while some articles met the inclusion criteria, they evaluated performances in regular professional training processes in health [26, 27] , leaving aside the analysis of teaching-learning processes in public health contexts. For this reason, they were excluded from the analysis. The research was conducted across five continents: Europe (n = 14), Asia (n = 13), North America (n = 8), Africa (n = 3), and Oceania (1). Twenty-five studies involved adults aged between 35 and 60 years, while ten studies reported educational programs for self-management of health and disease with young adult participants between 18 and 35. In a smaller proportion, programs involving follow-up and control of people >65 years (n = 2) and accompanied by health professionals (n = 2) were identified. The general characteristics of the studies are presented in Table 1 . Table 2 contains a summary of the research included in this review, including information on the variables: author, year, country of study development, study design, population served, analysis of program effectiveness, tools, technologies used, and pedagogical strategy. The selected studies were published between 2016 and 2020. Disease self-management programs link different pedagogical strategies and learning methodologies developed to contribute to the knowledge and control of chronic diseases. It was highlighted that 16% of the investigations [7, 31, 33, 34, 47, 48] related to using the DSME (diabetes self-management education) methodology to self-manage Type 1 and Type 2 Diabetes, focusing on glycemic control measures because of changes in glycosylated hemoglobin. Likewise, the COPERS (Coping with persistent Pain, Effectiveness, Research into Self-management) methodology [32] and the TPE (Therapeutic Patient Education) methodology [39] were used to identify the needs of patients and family members in pain management. Concerning the above, the results showed that only 21% of the research on medical and health education [9, 15, 20, 22, 30, 47, 48, 56] described educational programs or actions oriented around community-based health and appropriation of culture [6] . Similarly, methodologies that allowed discussion and knowledge exchange among patients in collaborative groups in contextual intervention programs were recognized. We also found analyses of patient perception through the accompaniment of a professional or the majoritarian use of qualitative analysis tools. Figure 2 presents the trends in methodological design. grams or actions oriented around community-based health and appropriation of culture [6] . Similarly, methodologies that allowed discussion and knowledge exchange among patients in collaborative groups in contextual intervention programs were recognized. We also found analyses of patient perception through the accompaniment of a professional or the majoritarian use of qualitative analysis tools. Figure 2 presents the trends in methodological design. This review showed that 29% of the texts studied [20, 22, 28, 29, 34, 37, 40, 47, 54, 55, 57] reported technological tools as a digital literacy alternative for people with health conditions, as well as for professionals, family members, and caregivers. Technological tools accessible to the community were identified using free applications, such as WhatsApp and WeChat, accessible via smartphone, and disseminating content through websites and social networks, defined as Digital Health Interventions (DHI). It was emphasized that the analysis of technological tools, which contributed to selfmanagement of diseases, were contemplated where technology was not an indispensable tool for their management, as reflected in 71% of the investigations that do not report the mediation of technology in their educational process. This point becomes relevant for identifying lessons learned and best practices of current educational processes that aim to meet educational challenges during and after pandemics, where technology is the main instrument for transmitting knowledge. This review showed that 29% of the texts studied [20, 22, 28, 29, 34, 37, 40, 47, 54, 55, 57] reported technological tools as a digital literacy alternative for people with health conditions, as well as for professionals, family members, and caregivers. Technological tools accessible to the community were identified using free applications, such as WhatsApp and WeChat, accessible via smartphone, and disseminating content through websites and social networks, defined as Digital Health Interventions (DHI). It was emphasized that the analysis of technological tools, which contributed to selfmanagement of diseases, were contemplated where technology was not an indispensable tool for their management, as reflected in 71% of the investigations that do not report the mediation of technology in their educational process. This point becomes relevant for identifying lessons learned and best practices of current educational processes that aim to meet educational challenges during and after pandemics, where technology is the main instrument for transmitting knowledge. According to the SIGN checklist, 18 of the studies [7, 20, 28, 30, 31, 33, 35, [37] [38] [39] [40] [41] [42] [43] [44] [45] 49, 55] were rated "high quality" and 17 studies were "acceptable quality" [5, 6, 15, 19, 29, 34, 36, [46] [47] [48] [50] [51] [52] [53] [54] 56] . Although the studies were rated as being high and acceptable quality, for sample selection random assignment was used and no detailed description of the procedure was provided. Three of the studies were rated as low quality [9, 22, 32] . The main reasons for the "low quality" ratings were inadequate randomization or the method of concealment used. Among the 11 categories of the SIGN checklist, the studies were classified as "high risk of bias", particularly in two categories: "when the study is conducted at more than one site, are the results comparable for all sites?" and "how well was the study conducted to minimize bias?". These categories were identified following the results assessment by each author. Figure 3 presents the risk of bias graph. provided. Three of the studies were rated as low quality [9, 22, 32] . The main reasons for the "low quality" ratings were inadequate randomization or the method of concealment used. Among the 11 categories of the SIGN checklist, the studies were classified as "high risk of bias", particularly in two categories: "when the study is conducted at more than one site, are the results comparable for all sites?" and "how well was the study conducted to minimize bias?". These categories were identified following the results assessment by each author. Figure 3 presents the risk of bias graph. the only difference between groups is the investigational treatment; (1.7) all relevant outcomes are measured in a standard, valid, and reliable manner; (1.8) what percentage of individuals or groups enrolled in each treatment arm of the study dropped out before the study completion? (<20% low risk of bias); (1.9) all participants are analyzed in the randomized groups (often referred to as intention-to-treat analysis); (1.10) when the study is conducted at more than one site, the results are comparable for all sites; and (2.1) how well was the study conducted to minimize bias? In interpretating the findings, we were careful about generalization due to the number of studies reviewed and their open-access character. However, the results allowed us to answer the guiding research question and identify the educational process characteristics of self-management of health in public healthcare. The results aligned with recent research on the innovation needs of medical and health education programs reported by health institutions and agencies worldwide [28, 30] . The articles reviewed describe educational programs focused on self-management and self-control to contain disease, especially chronic disease care. These articles suggest that public health education processes the only difference between groups is the investigational treatment; (1.7) all relevant outcomes are measured in a standard, valid, and reliable manner; (1.8) what percentage of individuals or groups enrolled in each treatment arm of the study dropped out before the study completion? (<20% low risk of bias); (1.9) all participants are analyzed in the randomized groups (often referred to as intention-to-treat analysis); (1.10) when the study is conducted at more than one site, the results are comparable for all sites; and (2.1) how well was the study conducted to minimize bias? In interpretating the findings, we were careful about generalization due to the number of studies reviewed and their open-access character. However, the results allowed us to answer the guiding research question and identify the educational process characteristics of self-management of health in public healthcare. The results aligned with recent research on the innovation needs of medical and health education programs reported by health institutions and agencies worldwide [28, 30] . The articles reviewed describe educational programs focused on self-management and self-control to contain disease, especially chronic disease care. These articles suggest that public health education processes continue to prioritize remedial objectives over treatment outcomes for health maintenance. While public health processes aim to prevent diseases, promote and maintain health and quality of life, the above is interpreted as a call to public health and medical and health education to diversify their objectives and educational strategies for the prevention, promotion, maintenance, and monitoring of population health. Doing so aligns with the recommendations of the World Health Organization (WHO). It invites broadening of the clinical and therapeutic perspective of healthcare and health education through strategies that build frameworks of trust, social support, and learning which respond to the needs of individuals and communities for health and welfare beyond the health-illness binomial [27] . Thus, it seems that health education programs continue to emphasize informative actions on the self-management of diseases, leaving at a low priority the training and monitoring of learning and the appropriation of knowledge and skills for self-care and self-management of health in the daily activities of families and communities [22] . Some recent research initiatives have sought to decenter the functionalist perspective of health education programs. However, little research has helped guide the development and implementation of practical health promotion efforts [23] . Most of the findings report educational programs focused on measuring changes in signs and symptoms of disease and, to a lesser extent, assessing behavioral changes to achieve self-management of health. There are few learning assessment products developed in health training. The findings of this review indicate that health education programs in public health face significant challenges in guaranteeing program access, participation, and permanence and improving the effectiveness of the learning processes. The programs studied mainly address objectives for the self-management of diseases, remaining at the level of health maintenance, and lacking educational processes for disease prevention, promoting integral health, and monitoring people's quality of life and welfare. Some studies emphasized the importance of involving the participants in the design of the educational sessions and using tools, such as dialogue and other interactive methods, to improve participation [28] . Thus, methods, such as peer education, are proposed to strengthen the emotional bonds that alleviate the psychological pressure caused by the health affectation [38] . Other proposals include training and solid supervision of health educators to develop contextual patient-centered approaches. However, the results showed that less than a quarter of medical and health education research describe programs or educational actions oriented to community-based health. Regarding technological tools, electronic education has become crucial in the information era and, therefore, it is also incorporated in medical and health education processes. Our results identify that technologies have offered robust mechanisms that support the self-management of health and guarantee a lasting educational experience for people, any time and place [30] , with new ways to favor self-management processes in public health. Furthermore, tools such as the Internet and technological devices have made it possible to easily and quickly view or generate content (text, images, voice, and video) to support health literacy and self-care, and contribute to the population's quality of life. However, these technologies require digital literacy processes for people with health conditions, professionals, family members, and caregivers. The findings report that educational processes for self-management of health hold promise for public health intervention when technology supports it. This review suggests recognizing and integrating the transformative possibilities of community education methods coupled with the use of technology. In addition, it is relevant to consider the pedagogical character of health education processes to improve the effectiveness of the programs. To this end, it is essential to strengthen the educational training processes for health professionals and structure evaluation goals for the teaching-learning process in these programs. The assessments should cover content, teaching strategies, appropriation of knowledge, and self-management of health in populations. Concerning technologies in the training processes, their functionality and usability, with regard to achieving the expected learning, should be evaluated. The findings regarding health education methods of self-care as part of communitybased care and how technological tools are used are fundamental to this review. Consequently, we urge future research to focus on studying the barriers and facilitators that arise when using technological tools as mediators of learning in health education programs, mainly in terms of access to infrastructure, generational gaps, cultural factors, levels of digital literacy, and economic disadvantages [23] . One limitation of this systematic review is language bias, as we only included studies published in English. Therefore, studies published in other languages, such as Chinese and Japanese, were not included in this review. In addition, the review did not include research from grey literature, which could exclude important unpublished pieces produced by non-governmental organizations. Finally, it should be noted that the analyses performed represent a partial view of the phenomenon under study and, therefore, the generalizability of the data is not considered. Despite these limitations, this literature review study increased the understanding of self-management health education processes and identified opportunities for improvement. This review began with the question, "what are the characteristics of educational processes of self-management of health in public health care?". We identified that the most relevant characteristics respond to objectives focused on self-management of diseases, primarily chronic, and mitigating disease signs and symptoms. There is a focus on remedial education for the maintenance of health that is typical of hospital environments, which, in the public health context, is limited. In this regard, institutions and researchers propose innovative medical and health education processes to improve training and contribute to the prevention, promotion, care, maintenance, and monitoring of integral public health. The innovative processes highlight social and community-based learning characteristics that involve peers, caregivers, families, and professionals in training actions. In addition, some initiatives highlight socio-emotional characteristics of education and the need for contextual learning in daily life practices. Finally, there are characteristics oriented around using technological tools in the teaching-learning process as an area of opportunity to improve their effectiveness and increase their coverage. Future research is invited to examine the barriers and facilitators in medical and health education programs using socio-community and technology-enhanced educational strategies. Furthermore, the contributions of innovative processes for public health education toward long-term improvements in self-management of health and diseases should be evaluated. These research needs are especially relevant due to the COVID-19 health crisis because the fundamental medium of knowledge transmission for the formulation and implementation of health education programs, which recognize the health, economic, social, and cultural realities of communities, has become technology. Los tratamientos de datos personales en la crisis del COVID-19. 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The authors would like to thank Roberto Martínez-Maldonado from Monash University for his contribution in the review process of this article. The authors declare no conflict of interest.